Living with persistent illness and uncertainty: Patient narratives on Lyme disease in Nova Scotia, Canada

Author:
Publication type: 
Journal Article
Publication date: 
2026-08
Journal/Series title: 
Soc Sci Med
Abstract: 

The findings illustrate how individuals navigate the intersecting domains of embodied experience, biomedical uncertainty, and institutional structures, and how experiential knowledge becomes a resource in the absence of clear clinical consensus. This study contributes to broader discussions about contested illness, the politics of visibility, and the need for responsive, context-sensitive approaches to Lyme disease policy, communication, and care.